Wednesday, November 16, 2011

My Story: Guest Blog Posted On Lyme Chick and A Slice Of Lyme

I recently had the opportunity to guest blog on Lyme Chick and A Slice Of Lyme. These two women have brought an uplifting voice of strength to the Lyme community. It is truly an honor to be part of it. Thank You both! 


My Story: 


Hello, my name is Mara Williams and I am a Nurse Practitioner. Three years ago I was working for an Integrative Doctor who discovered her daughter had Lyme Disease. She decided to begin treating it and spent the next few weeks with LLMD's. Anything that she did, I needed to learn as well, so I dove right into it. I listened to ILADS workshops, studied power point presentations, and read whatever I could find about the disease. Needless to say, I was absolutely stunned by the medical controversy, the political conflict of interests, and the horrific marginalization of care that our current healthcare has bestowed upon those who suffer from Chronic Lyme Disease.


Eventually, I left this practice and moved on to work at Gordon Medical Associateswhere I began what I call, "Grad School" for CLD as well as other Chronic Illnesses. Then, about a year and a half ago, I was shocked to discover that my own daughter, Amanda, had Lyme Disease. She fell gravely ill, and our journey began in earnest on Sept. 26, 2010, when we first went to the ER for unrelenting vomiting and severe dehydration. Since that day, we have been gone an additional sixteen times for the same symptoms, and she has also been admitted seven times as well. We tried several different hospitals, but they were all the same in how they chose to address her condition.

On our seventh trip to the ER, I finally realized that Amanda was not going to get the support or treatment she needed for her illness. The only thing the hospitals were willing to do for her was to get the vomiting under control and give her IV meds for a few days until she was able to take food and fluids by mouth. Because her initial CT Scan and labs came back normal, no diagnostic work-up or antibiotics were given to her. One doctor wanted to diagnose Fibromyalgia, another Rheumatoid Arthritis, and most just saw Amanda as a Psych case.

I knew then that what was needed was a center where those with tick borne diseases could go for treatment and support in a compassionate setting and receive care as if they were in a hospital with 24/7 nursing care and other support.

I began talking to friends about creating such a place that I would call, "Inanna House" and telling them how I envisioned it. One friend advised me to write a book so that I would have some clout when I presented a business plan to those with the resources to fund the center.

This motivated me to write, "Nature's Dirty Needle". The book describes what it is like for those who suffer from Lyme and its co-infections, how it affects their families and friends, and how it impacts their lives on every level, and in every way. I wanted the book to be a resource for those still undiagnosed, and for those family members of Lyme sufferers who do not believe that they are sick, and mistakenly think it's all in their head. Reading story after story of cases with so many similarities brings home the reality of Chronic Lyme Disease, and how devastating it is for everyone concerned.

I have been asked many times to write another book with more stories after Inanna House is up and running and cannot wait to do so, and share all the success stories we will have to tell from it.

Inanna House will be a place of hope, healing, and peace. I envision a retreat-like setting in the country, private rooms, safe pathways for walking, pools and hot tubs, an infrared sauna, energy treatments, IV treatments, IV antibiotic treatments, detox programs, organic, healthy foods to eat, and emotional support. I believe that the mental, psychological, emotional and spiritual aspects need addressing in order to completely heal from any disease, and this will be a part of the program as well. I also plan to create an endowment so that those who have depleted their resources can still come and experience this unique type of healing. At this center, the best of all worlds of medicine will be incorporated into the program.

Inanna House will also have MD supervision. There will be treatment rooms, a clinic, and room for conferences and classes. I hope to be able to offer residencies for health care professionals so we can increase the number of Lyme literate providers. I also hope to use the clinical data we collect to further prove to the nonbelievers that we aren't crazy, and that these infections do indeed exist, and in epidemic proportions.

Currently, we are treating Amanda at home. We give her IV hydration everyday, and include amino acids and minerals, and phosphytidal choline, which helps bind the die-off toxins, clean cellular debris, and enables the liver to function better. We are giving her meds around the clock every four hours. 

Her pain with the Herxing is incredible, but after fourteen doses of Gentamycin for Bartonella, her eyes are more clear, her brain is more sharp, and her nausea is better. She is encouraged and feels that she is finally moving forward. However, it's unbelievably shameful that we are forced to do this at home because hospitals either don't believe she has an infection or are in fear of their liability. 

This MUST change, and by creating Inanna House, I believe that the Lyme community will be taking their first step in the right direction, and will soon be shown the acknowledgment they deserve in our current healthcare system.

Thank You,

Mara Williams, NP







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"We all strive for balance in our lives. If you find yourself striving for inner peace and a sense of harmony, it takes more than a good attitude. Our sense of self is regulated by neurotransmitters, hormones, and many other cellular functions within our bodies that influence our stamina, immune function, sexual drive, and nervous systems."

Nurse Practitioner and Energetic Healer, Mara Williams has been a health care provider for over 30 years. For 15 years, Mara worked in Hospice, helping people at the end of their life. For most of her life she has been devoted to a spiritual practice and developing her gift of working with energy. Eventually she returned to school at UCSF to earn a Masters and become a Nationally Board Certified Adult Nurse Practitioner so she could have a greater impact in helping people heal. Currently, she specializes in treating people with Tick Borne Diseases (TBDs), using an integrative approach to help them attain greater health and well-being. The secret to healing is discovering the root cause of the problem, and this is what Mara does best.

Besides being a provider, Mara has personal experience as a mother of a child with Chronic Lyme Disease. It has given her a greater understanding of what patients with TBDs experience in the Medical World of Western Medicine and how difficult it is to find a Lyme-literate provider who recognizes and understands the complexity of these chronic diseases.

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